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~ Pergamon 0277-9536(95)00079-8 Soc. Sci. Med. Vol. 42, No. 1, pp. 59-73, 1996 Copyright © 1996 Elsevier Science Ltd Printed in Great Britain. All rights reserved 0277-9636/96 $15.00 + 0.00 WOMEN AND AIDS: AN ANALYSIS OF MEDIA MISREPRESENTATIONS VALERIE SACKS Department of Anthropology, University of Arizona, Tucson, AZ 85721, U.S.A. Abstract--A close reading of popular discourses on women and the AIDS epidemic reveals the ways in which such depictions produce and reiterate power-laden notions of normative sexuality. Prostitutes, one frequently depicted 'kind' of woman, are presented as indiscriminate, polluting to men and categorically different from 'normal' women. Other women depicted in AIDS discourses are almost always HIV-positive mothers or pregnant women; these women are usually only of concern insofar as they may infect their babies. The themes of self-control, self-discipline and personal responsibility may also stigmatize women. Such discourses suggest that those who have AIDS are responsible for their own illness. They also deflect attention away from the socioeconomic contexts that may make it more difficult for some to avoid infection, away from the connections between poverty, illness and disempowerment, and away from systematic inequalities that characterize U.S. society. Key words--women, AIDS, media, inequity INTRODUCTION The seventeenth century.., was the beginning of an age of repression emblematic of what we call the bourgeois societies . . . . Without even having to pronounce the word, modern prudishness was able to ensure that one did not speak of sex . . . . Yet when one looks back over these last three centuries ... things appear in a very different light: around and apropos of sex, one sees a veritable discursive explosion . . . . [1] (p. 17). A massive amount of media attention has been devoted to the subject of AIDS, to a degree rather remarkable for what is really 'just' a disease. Why so much talk about what is at essence a public health issue, though admittedly a quite grave and frightening one? A number of writers have addressed this issue, particularly in the context of the stigmatization of homosexual men and, to a lesser degree, in response to the demonization of the 'other': black Africans and Haitians, both of whom have figured prominently in Western scientists' search for the origin of the virus. This literature has evaluated the ways in which discourses on AIDS have further stigmatized these groups, already construed as 'deviant' in some way. Predominant themes have been the differentiation among members of 'risk groups' and the 'general public' [2]; assumptions about the 'deviant' sexual practices of gay men, Haitians, or Africans [3, 4]; and a demarcation of 'guilty' and 'innocent' victims of AIDS. In this latter category, 'guilt' or 'innocence' is associated with the means of infection, the identity or risk-group affiliation of the sick person and the attribution of personal responsibility for illness [5]. The underlying explanation given by those critical of mainstream discourses about AIDS usually boils down to explanations that account for the stigmatization of homosexual men in the context of a generalized homophobia, the stigmatization of people of color in the context of a generalized racism, or a general tendency for people to blame others for their problems, particularly certain 'kinds' of others (see, e.g. Refs [6-12]). Such explanations are undoubtedly true as far as they go. However, critics of popular and public discourses in the West in general and in the U.S. in particular who fail to place their observations in a more meaningful or general context by emphasizing one axis of stigma and inequality by itself neglect to explain why homophobia and racism are such persistent themes in discourses on AIDS. There has been comparatively little written on the stigmatization of women by AIDS discourses, the topic of this paper, but likewise it would be inaccurate to account for the nature of these discourses solely by reference to sexism. Such explanations help us understand the content of these discourses, but they fail to account for the insistence with which certain stories or explanations are put forth, take hold and shape images of afflicted people or members of high-risk groups. What function or more general purpose, that is, does this effusion of discourses serve? Foucault's work on sexuality, discourses and power is enlightening in this context. In the first volume of The History of Sexuality, Foucault contrasts our stereotypical conception of Victorian discourses on sexuality as repressive with the 'discursive explosion' on the topic of sexuality that he observes during this period. In the course of this volume, he argues that it would be mistaken to construe these 59 60 Valerie Sacks prolific discourses on sexuality as repressive; they can more accurately be described as creative or productive in that they establish and reiterate conceptions of what is and is not 'normal'. In doing so, they form important mechanisms for the social control of bodies: "one had to speak of (sex) as of a thing to be not simply condemned or tolerated but managed . . . . " [1] (p. 24). Thus, argues Foucault, what has been required since the seventeenth century is "[a] policing of sex.., through useful and public discourses" [1] (p. 25). Through such discourses, "legal sanctions against minor perversions were multiplied; sexual irregularity was annexed to mental illness; from childhood to old age, a norm of sexual development was defined and all the possible deviations were carefully described" Ill (p. 36). While "[t]he legitimate couple, with its regular sexuality.., tended to function as a norm", there was a "setting apart of the 'unnatural' as a specific dimension in the field of sexuality" [1] (p. 39), a dimension which was regulated, stigmatized, medicalized, criminalized and psychiatrized, and which was integral to the propagation of embodied relations of power. While sexuality is by no means the only realm subjected to this intense scrutiny, it is certainly an important one. Bodies, as a "point of intersection ... between the biological and the social" [1] (p. 24), constitute a region wherein notions of 'natural' and 'unnatural' are densely interwoven. Bodies clearly have certain biological elements, but what these elements are, and where the biological realm ends and the social and cultural realms begin, is a question of intense contestation and ambiguity. This ambiguity makes it possible for hegemonic 'truths' to define what is and is not natural, and in so doing, to reinforce existing hierarchies. As Foucault describes, discourses play a key role in the creation and dissemination of 'truths' about the world and about society, 'truths' that have a normalizing and regulatory function [13]. Through discourse--along with the extension of forms of institutional power, another key mechanism--existing modes of social control are created and perpetuated. Power becomes internalized such that it becomes no longer necessary for governments to make overt shows of power in order to ensure a docile populace; from every direction, we reproduce the dominant paradigm ourselves, actively but usually not consciously, and whether or not it would seem to be in our own interest to do so. In other words, relations of power are produced and reproduced from every point, including through institutions of various *The other main kind of deviant woman, the lesbian, does not appear as such in these discourses, probably due to the low likelihood of becoming infected through lesbian sex. (Lesbians may, of course, become infected through IV drug use, sex with infected men, blood transfusions, alternative methods of fertilization [15] (p. 28) or oral sex during menstruation [15, 16].) kinds, through public discourses and through our bodies. Sexuality is certainly not the only mode by which this diffuse power is propagated; "lilt appears rather as an especially dense transfer point for relations of power" [1] (p. 103). In other words, "Sexuality is not the most intractable element in power relations, but rather one of those endowed with the greatest instrumentality" [l] (p. 103). AIDS discourses, because they are ostensibly about disease, but equally about sexuality and power, reflect this diffusion of power relations in their reproduction of already existing mechanisms and patterns of social control. Surely all these discourses on AIDS can be seen in this light: so prolific, so fixated on 'perversions' and irregularities in sexual behavior, and so repetitive in their depictions of the practitioners of these allegedly divergent forms of sexuality as members of groups clearly distinct from the 'general population', worthy of stigma, and needing to be reached, controlled and subdued through the tentacles of discourses and institutions. Discourses help these behavioral norms to become internalized, and in so doing to reinforce existing social, political and economic hierarchies. They are patterned in systematic ways, ways which perpetuate perceptions of certain 'kinds' of behavior, and--because, according to Foucault, sexual behavior is perceived as isomorphous with identity--certain kinds of people as deviant, less valuable, more prone to and deserving of disease, and inexplicably intriguing in their apparent perversity. Thus, for instance, mainstream media represent Western prostitutes qua prostitutes (as in contrast to qua IV-drug users) at rates quite disproportionate to their actual importance as disease vectors. This frequent depiction of prostitutes can be explained not by their role as transmitters of HIV-- which is not very significant, as will be addressed below--but by their obvious and public refusal to attempt to conform to ideals of femininity. In this way, the facts about the prevalence of seropositivity among prostitutes is less important than the historical association between prostitution and impurity [13] or disease [14]. In this paper I will examine discourses on women and AIDS in a context that recognizes Foucault's contributions, and that seeks to understand them in terms of a production and reproduction of certain kinds of sexuality, of certain kinds of bodies, and of certain kinds of power. DISCOURSES ON AIDS AIDS discourses on women are overwhelmingly about women whose behavior puts them on either extreme of female deviance. On one end of the pole are the prostitute, representing the apparently indiscriminate woman, and the pregnant, HIV-positive woman, representing the unfit mother; at the other end lies the 'innocent' woman--she who became infected by her dentist, or by the sole unsafe activity of her life.* Mainstream U.S. literature and other Women and AIDS 61 public discourses on AIDS are not monolithic, but certain themes pervade and predominate. Because these normative notions of sexuality encompass not only ideas about sex, gender and power, but also of race, class, nationhood and otherness, I will include in my analysis of 'the prostitute' U.S. discourses on foreign women. Although normative notions of sexuality vary cross-culturally, Western AIDS discourses often express assumptions about non-Western women's sexuality similar to those they make about Western women's sexuality. The ways in which these images differ is also instructive. PROSTITUTES Prostitute as polluter A first set of themes concerns assumptions about prostitution as a dangerous form of female pollution, and prostitutes as a category of persons especially likely to be diseased and contagious. A great deal of attention both locally and internationally has focused on the potential role of prostitutes as vectors of HIV. This level of attention is remarkable given the inconclusive findings regarding rates of seropositivity among non-IV drug-using prostitutes in the U.S. and other Western countries--and given the lower probability of a man contracting the disease from a woman than vice-versa since about one in three women but only one in fifty men has contracted HIV through heterosexual contact [17].* These AIDS discourses nonetheless insist that prostitutes are infecting the 'general population', when in fact the evidence supporting this contention is quite mixed. Part of the confusion stems from media discussions' failure to distinguish between professional prostitutes and those who engage in sex *Two factors may account for this. First, more men than women are HIV-positive in the first place, meaning that heterosexual women have a larger pool of HIV-positive potential sex partners than do heterosexual men. Second, male-to-female transmission may be more efficient [17]. tAmong prostitutes in developing countries, rates of seropositivity may be quite a bit higher. I have encountered no study that attempts to account for this but there is reason to suggest that significant factors contributing to high rates of seropositivity include the documented prevalence of STDs among women in developing countries [18, 19]. In Thailand and elsewhere, IV-drug use among prostitutes or sex with IV-drug-using men may be significant factors as well [20]. ++European studies reiterate findings that infection rates among IV-drug-using prostitutes are much higher than among non-IV-drug-using prostitutes, among whom infection rates are low [25]. In England, 80% of the women in a cohort study of prostitutes contacted through a clinic were tested for HIV. Of these women, only 2% were found to be carrying the virus [26]. Studies from the former West Germany found <1% of the registered prostitutes to be HIV-positive [25]. Other studies in Europe also confirmed these findings [24]. work to support their drug habits (usually IV-drugs or crack). These categories are not discrete and homogeneous, but in general non-IV-drug using and IV-drug-using prostitutes do not face the same level of risk for becoming infected or infecting others due to their different patterns of condom use and different clienteles. While Western, non-IV-drug-using prostitutes harbor quite low rates of HIV infection, rates of infection among IV-drug-using prostitutes are much higher--but probably due mostly to needle-sharing rather than to intercourse. Nonetheless, these categories are routinely conflated in discourses on AIDS.t Numerous studies in the West have examined the presumed link between HIV and prostitution and, over and over, have found that very few prostitutes are seropositive; that rates of HIV infection among prostitutes are similar to those among women who are not prostitutes; and that of those women in either category who are seropositive, almost all have a history of IV-drug use or have been in intimate relationships with men who are IV-drug users or bisexual. For instance, as of 1988, no sex workers in Nevada, where testing is mandatory, had been found to be HIV-positive [21]. In New York City over a ten-year period, only seven of 17,000 men with AIDS reported "sex with women at risk" as their primary risk factor [22] (p. 158). A survey of ten studies in major U.S. urban centers also found no evidence of prostitutes transmitting the AIDS virus to "the public" [22]. IV-Drug use, however, is a frequent mode of transmission, as is sex with IV-drug-using or bisexual men. A San Francisco-based study found no difference in HIV status for prostitute and non-prostitute women; in either case, however, those who were HIV-positive were either IV-drug users or involved with IV-drug-using or bisexual men [23]. Another study using both a control group of heterosexually active women who were not prostitutes and a prostitute group found that the incidence of infection, 4.5%, was the same in both categories [21]. All of those infected had a history of IV-drug use, while non-IV-drug-using prostitutes were free of infection. The Centers for Diseased Control (CDC) confirmed that the incidence of HIV infection among prostitutes is about the same as among women in general, that IV-drug use is overwhelmingly the cause of transmission, and that IV-drug-using prostitutes are about four times more likely to be HIV-positive than are non-IV-drug-using prostitutes [17, 24].~: Contributing to the misapprehension that prostitutes are reservoirs of disease are ill-executed studies so designed as to increase the likelihood of finding high rates of seropositivity. Such methodological problems include failing to use control groups of non-prostitute women, using outdated and inaccurate testing methods likely to generate many false positives, and choosing a population of prostitutes more likely to be IV-drug users [21]. One notably bad study 62 Valerie Sacks Table 1. Coverage of prostitutes and AIDS in the Washington Post and The New York Times from September 1985 through April 1988 No. of articles Wash. Post NYT Sympathetic i. Prostitutes do not transmit AIDS through sexual intercourse. 0 II. Prostitutes are survivors and/or victims of AIDS transmission. 2 Ill. There is insufficient evidence of female-to-male 0 transmission of the AIDS virus to determine a causal relationship between prostitutes as sexual transmitters of AIDS to men. IV. Sex with a prostitute is a low-risk activity not likely to 0 give men AIDS. Total: 2 Neutral V. "Balanced" coverage of the question of sexual 0 transmission of the AIDS virus from women prostitutes to men. Total: 0 Unsympathetic VI. Sex with a prostitute is a high-risk activity likely to give men AIDS. VI. (Implicit message that having sex with a prostitute will give men AIDS.) VII. Sex with a prostitute will definitely give men AIDS. Total: 5 15 2 3 3 0 i0 18 c The Hayworth Press, Inc. All rights reserved. Reproduced with permission. For copies of this work, contact Laura Stevens'-a.t The Hayworth Document Delivery Service (Telephone 1-800-3- HAWORTH; 10 Alice Street, Binghamton, NY 13904). For other questions concerning rights and permissions contact Wanda Latour at the above address. forced women who had been arrested for prostitution in Seattle to be tested using an inaccurate method. The researchers found seropositivity rates of 4.5%, a percentage which, as Priscilla Alexander, co-director of the U.S.-based prostitutes rights organization COYOTE (Call Off Your Old Tired Ethics) put it, "was widely publicized and was used as documentation for those wishing to blame prostitutes for the spread of AIDS" [21] (p. 170). When the women in the original study group were tested again with a more accurate test, none were found to be seropositive. These later results, unfortunately, were never publicized. In other studies, women have been selected for testing at jail, in drug rehabilitation programs [27], and at STD clinics [21], the same places one might look to find women who used IV drugs or who did not practice safe sex. Not only are non-IV-drug-using prostitutes unlikely to be HIV-positive, they are not particularly likely to be transmitters of the virus since, as studies in a number of centers have found, most non-IVdrug- using prostitutes use condoms as a matter of course [28], and in general to a much greater degree than women who are not prostitutes [29-31]. Informal networks of prostitutes who encourage the use of condoms as protection from sexually transmitted diseases [29] may account for the much higher level *One study cited in Ms. found very low rates of condom use among prostitutes. However, this reference does not elaborate on the study's methodology nor give any information about the study population beyond stating that they are prostitutes [15]. of awareness found by a Project AWARE study comparing condom use among prostitutes and nonprostitutes [21]. COYOTE also emphasizes that use of condoms is part of prostitutes' professional code [21].* Concern about health and a network promoting safe sex are important reasons for condom use among prostitutes, but may only be part of the story. In her ethnography of a group of London sex workers, Sophie Day found that condoms serve as important ideological tools for creating and maintaining boundaries between public and private sexual contacts. The 'unnaturalness' of condoms and their presence as a physical barrier between the client and the prostitute are regarded by Day's informants as positive characteristics because of their utility in helping maintain the separation between work and non-work contexts [26]. Another study reports similar patterns among U.S. prostitutes [29]. The connection between HIV and prostitution has lingered in the public's mind and in press reports despite the weak evidence linking them. Donna King's study of coverage of prostitutes in the context of AIDS in the Washington Post and New York Times from September 1985 through April 1988 found that There is a continuing misrepresentation in the media of women prostitutes as "transmitters" of AIDS to men through sexual intercourse, despite the fact that the data has pointed to male-to-female transmission as... the overwhelming mode of sexual infection. There is also little concern with the health of the prostitutes themselves, but only with their role as possible disease vectors [22] (p. 175). The results of her study are summarized in Table 1. Women and AIDS 63 Also perpetuating such notions are reports of AIDS abroad in popular news and business magazines, which consistently emphasize the risks to men of becoming infected by prostitutes rather than, as far more frequently occurs, the reverse. In a series of articles on AIDS in Asia in the Far Eastern Economic Review, a Hong-Kong-based international business publication aimed at Westerners, it is declared that AIDS in Asia has established a clear pattern, starting with IV-drug-abusers who share unsterilized needles, hopping to low-paid prostitutes, then migrating into the broad population as the prostitutes' clients transmit the virus to their wives [32] (p. 28). Here the focus is on the clear pattern of transmission into the "broad population" [32] (p. 28). Elsewhere, the writer declares that "The Thai male's penchant for visiting brothels has been the main engine of transmission throughout the country and across social classes. From the men, the disease passes to girlfriends, wives and children" (emphasis added) [32] (p. 29). Another writer for the Far Eastern Economic Review states that "Although the prevalence among pregnant women is still low, heterosexual transmission from prostitutes to male customers will certainly be a serious problem for the century"'(emphasis added) [33] (p. 28). In all these cases the emphasis is on prostitutes giving the virus to men, rather than vice versa--contrary to the two-way transmission implied by the writers' own reports. Similar notions come across in an article on a U.S. army study that, despite admitting "rampant promiscuity and venereal disease among men in the armed services.., concerns itself not with the danger to women these men present, but rather with women as potential transmitters of AIDS to men" [22] (pp. 170-171). As Tiffany Devitt put it, The majority of articles in the U.S. press on women with AIDS allude to the prevalence of HIV among prostitutes. But in almost every instance the emphasis is on the potential for sex workers to spread the disease, rather than catch it [34] (p. I0). Such pervasive and biased reports and studies perpetuate assumptions of prostitutes as 'vectors' of HIV, and produce and reproduce already existing notions of female sexuality as dangerous and polluting. In this context, calls for such repressive measures as increased regulation of prostitutes via registration, mandatory testing, prison for HIV-positive prostitutes, and abolition of prostitution [21, 24, 25, 30] are not surprising. A number of states have seriously considered mandatory testing laws for prostitutes [30]. Such measures are generally costly and ineffective, if not counterproductive. They are not only likely to discourage safe sex practices among the population as a whole by creating a false sense of security outside of the targeted groups (see below), they also overlook the fact that prostitutes do not seem to be major conduits of the virus. They are, however, at risk of becoming infected by clients, particularly by those who refuse to use condoms or offer more money for sex without condoms [5, 21J--- offers that those most desperate for money--more often than not, IV-drug-using prostitutes--may not feel they are in a position to turn down [5, 35]. In fact, prostitutes both here and abroad have cited "clients' resistance or refusal" as the primary factor in non-use of condoms [28] (p. 17). Client as victim Even where rates of seropositivity among prostitutes justify media attention, mostly in developing countries, the focus is still overwhelmingly upon the prostitutes as the infectors, rather than as the infected. In this depiction, the actual power relations between prostitute and client are reversed, and notions of female sexuality as dangerous and unclean, and of prostitute as essence, "perceived and responded to primarily in terms of (her) category membership", are perpetuated [36] (pp. 6-7). Such discourses also reassert a conception of (heterosexual) maleness as normative and of male experience and suffering as primary. At the same time, they seem to suggest that men are in particular danger of being polluted by women while they undermine recognition of the fact that, in this context, men 'pollute' women far more often then women 'pollute' men [17]. Despite this fact, there has been a conspicuous lack of attention to men's roles, particularly as clients. Those studies that do exist suggest that this population of men is very much in need of AIDS education to teach them that they are vulnerable to infection but can protect themselves and their partners (see, e.g. Refs [35, 37]). As noted above, clients often are willing to pay more for unprotected sex, often assume they 'can tell' if a woman is 'clean' or not, and often underestimate the danger of their becoming infected, being infected, or infecting others [35, 38]. An indirect focus on heterosexual men appears in AIDS discourses in ways quite different from those used to depict prostitutes. Men appear, for instance, emaciated and languishing in hospital beds from the ravages of AIDS. A Newsweek article, for instance, places a picture of a Thai bar girl massaging a Western man next to one of a gaunt Thai man in a hospital bed [39]. An episode of the PBS series Medicine at the Crossroads focussing on AIDS internationally follows this pattern despite generally quite matter-of-fact portrayals of some of the stigmatized groups at high risk. In this episode, men suffering from AIDS in the U.S. and elsewhere are depicted at several points, while women are only depicted in the context of AIDS-prevention interventions. Young Thai women working in a brothel in which 70% were HIV-positive were chosen as focal points. In this segment, the focus shifts back and forth between men hospitalized with AIDS and brothel prostitutes. "Initially being picked up by men from visiting brothels," 64 Valerie Sacks the narrator tells us, "the AIDS virus is increasingly being spread to their partners and to unborn children" (emphasis added) [40].* Certainly transmission from this group is a legitimate concern. However, juxtaposing dying men with seemingly healthy women in the context of their potential to infect others deflects the viewers' concern away from the women's suffering and toward their potential to transmit the disease, while it does just the opposite with men--even though the converse would present a more accurate depiction of reality. Along the same lines, a US News & World Report article goes on at some length about various men or groups of men and their risk of infection (e.g. elite Thai, Indian truck drivers), but never tells us the story of any woman suffering from AIDS, despite the fact that at several points it is implicit that depicted women (wives and prostitutes) quite likely have the virus [41-46]. Images of women suffering never seem to appear. These depictions, or lack thereof, reinforce notions of female as polluting and male as victim. They also have important public health implications, since the decision only to focus on women as infectors fails to address the fact that someone is passing the virus to the prostitutes in the first place--'someones' who may be transmitting the virus to wives and girlfriends at similar rates. Proposed measures such as mandatory testing also reflect a bias away from the reality of the disease and towards the perpetuation of stereotypes [21, 30, 34, 47, 48]. Such measures are bound to be of marginal efficacy--they might protect some heterosexual men by reducing the (already low) probability of transmission from prostitutes to clients. But they would do nothing to protect either prostitute or non-prostitute sexual partners of men. Further, such measures are dangerously counterproductive since the illusion of safety--a symbolic boundary between the stigmatized and unstigmatized groups--would undermine men's willingness to use condoms [32]. From a public health standpoint, such measures are not only pointless, but destructive insofar as they divert attention from more effective public health measures, encourage the stigmatization of HIV carriers, and help create "a false sense of security in people outside the targeted categories" [32] (p. 29). Despite the futility of pursuing such measures, the illusion of safety created by testing appears to be an enticing one. The U.S. military tried this route by testing all of their servicemen for HIV [5]. It was very costly, unable to eliminate the possibility of false positives or false negatives, and useless since any of the tested servicemen could, of course, easily acquire the virus the day after being tested. Nonetheless, the U.S. military 'guarantees' all their servicemen abroad to have tested negative, and unleashes this population onto the 'hospitality workers' near the military base *Characteristically, pictures of babies also appear rather frequently in AIDS discourses. See below. in the Phillipines [5] (p. 82). As one former 'hospitality worker' put it: Very few of the guys take this seriously, or will use condoms . . . . They are warned about getting VD and are told not to take too much money with them once they go off the base. It's all to protect the guys. They protect the servicemen, but not the working women [49] (p. 168). This is particularly glaring given the only-illusory effectiveness of screening out HIV-positive men, and the fact that the U.S. army's own study revealed "a significant amount of 'unsafe and indiscriminate' sexual behavior" on the part of its enlisted men [34] (p. 10)--meaning that men who are seronegative now may not be so for long. Typically though, "rather than focusing on the danger that these men might pose to others, media accounts emphasized the 'vulnerability' of soldiers to AIDS" [34] (p. 10). Mandatory testing of prostitutes or other 'risk groups' would be no more effective. First, testing would not address the 'vector' of transmission between prostitutes and other women or men. Second, testing laws would make those prostitutes who did test positive even more economically and socially vulnerable, more desperate to make money, and less able to protect themselves from their clients [48]. Those women who felt compelled by their economic circumstances to engage in sex work in the first place are unlikely to have equally lucrative economic alternatives available to them to replace sex work if unable to continue in their profession. Increased expenses due to health problems and the need to save money for the point when the syndrome becomes debilitating might also compel such women to continue working. Absent explicit provision for alternative resources to make it possible for sex workers to stop working, it is uncertain how effective mandatory testing plans could be. From a public health perspective, then, this persistent focus of public discourses on prostitutes as transmitters of HIV, rather than recipients or victims of it, is inexplicable. From the standpoint of Foucault, who would see this scrutiny as an important mechanism for shaping both the normal and the deviant, this focus makes more sense. Prostitutes are almost by definition beyond the bounds of 'respectable' society. AIDS discourses reproduce and perpetuate notions of their deviance, a notion of deviance closely linked to notions of female as polluting. These views of prostitutes as deviant or polluting emerge unscathed by the lack of evidence that in Western countries they have been playing the role assigned them in the epidemic. The lack of interest in prostitutes suffering from AIDS is not surprising either. As Edwin Schur states in Labelling Women Deviant, "Individuals often are stigmatized not so much for specific acts as for being certain kinds of persons, for membership in a devalued category" [36] (p. 17). In this way, prostitutes' failure to fulfill their role as contaminators or infecWomen and AIDS 65 tors does nothing to alter the way they are perceived. They become their deviant identity, and their stereotyped and monotypical role overshadows the heterogeneity of their individual experiences: "when individuals are 'seen' in terms of a deviant status and identity... It]he tendency is for that to be all the other persons 'see'. Such imputed deviant identity becomes.., the individual's essential character" [36] (p. 24). Proslitule as essence This 'essential character' of prostitutes in particular and, to a certain extent, women in general, is also reflected in AIDS discourses which assume that the category of 'prostitute' is a homogenous one defined by essentialized characteristics. This assumption directs attention away from the fuzzy boundary between 'normal' women and prostitutes, away from the context of poverty and disempowerment underlying many women's decision to engage in sex work, and away from the variation within the field of prostitution in terms of working conditions and risk for transmission of HIV. One implicit assumption is that there is a clear boundary between women who will exchange sexual services for money or other material goods and women who will not. This assumption, aside from being quite false at all levels of society, directs attention away from the various ways in which women may perceive the need to use sex as a strategy to gain access to men's resources, and away from structural inequalities along gender, race and class lines. Poor women in the U.S. often find themselves unable to fulfill their basic material needs. For such women, lack of economic opportunities and perhaps lack of work skills means that "sex becomes an economic commodity" [50] (p. 301). Such circumstances increase "the chances that they will turn to prostitution to support themselves, their partners, and their children" [50] (p. 301). Many women in situations of poverty and disempowerment rely on sex as a source of employment, as a means to establish ownership or proprietary rights in relationships, or as a means of simply getting tangible supports, generally short in supply [51] (p. 27). The boundaries between engaging or not engaging in sex work are permeable, as Shayne and Kaplan note [511. There is a great deal more research detailing the variety of ways in which poor women in developing countries may use sex to survive, research which may shed light on the diverse ways in which sex becomes a medium of exchange for those who lack access to other means. Thailand's infamous sex industry has fueled the emphasis placed on prostitutes' alleged role in spreading HIV in their country, but this emphasis rests on assumptions about the incommensurability of 'good' women and prostitutes. Susan Thorbek's study of women's roles and experiences in Bangkok's urban slums depicts a scenario in which women not infrequently exchange sexual services for economic assistance---whether formally through prostitution or informally through their dependent relationships with husbands orfeens (boyfriends/lovers) [52]. This illustrates "the interplay between women's difficult economic situation, their economic dependence on men, their sexual subjugation and the social definition of women's sexuality" [52] (p. 79). Thorbek found that "[t]hese factors are mutually reinforcing," and that [a]lmost all women in the slum were economically and socially dependent on men and on the sexual services they provided for men. This was true whether they were wives or minor wives; if they were, as often, dependent on a protector in the economic sphere, or if they were prostitutes [52] (p. 79). Although the relevant variables differ from place to place, in many parts of Africa a variety of indigenous patterns in concert with importations of the colonial system, the impoverishing effects of capitalism, and the spread of AIDS have created a situation in which African women's health may be compromised in a variety of overlapping and mutually exacerbating ways which ultimately make them more vulnerable to HIV. In a context of acute poverty, chronic overwork, malnutrition and illness [18, 53], women in a variety of contexts may need to exchange sexual services for access to men's resources. Such arrangements range from outside wives, in which married men seek out sexual services in exchange for lending material support [54] (p. 478), temporary marriages, by which a man may contract with a woman to provide conjugal services in exchange for a salary [55] (p. 207), boyfriends, who may be expected to provide their girlfriends with regular gifts, and the kind of brief and limited exchange we normally think of as prostitution [55]. Poor women dependent on such arrangements for part or all of their survival needs may have very little power to insist upon their sexual partners' monogamy or condom use. Monogamously married women economically dependent on their husbands may also have little control over their husband's behavior [18]. In contrast, the fact that at least some prostitutes in urban areas have been able to organize collectively and mobilize for safer sexual practices [54] means that, contrary to what one might expect, professional sex workers in some circumstances may have more power to protect themselves from AIDS than do monogamously married wives faithful to their husbands and conforming to the gender role norms expected of them. This exchange of sex for support may be more overt among poor women, and the market price of their sexuality may be lower. However, the notion of sex as a medium of exchange is by no means restricted to poor women, but is pervasive in U.S. culture. It is implicit, for instance, in the legal definition of rape in many states, which defines it as "sexual intercourse by a male with a female, other than his wife, without 66 Valerie Sacks the consent of the woman and effected by force . . . . " (emphasis in original) [56] (p. 22). Because the key issue is not "violent, unwanted sex" but "sexual assault by a man who has no legal rights over that woman" [56] (p. 22), rape becomes not a violation of a basic moral principle by which a woman should have the right to decide with whom she wants to have sex, but instead a property issue. Thus, "Society's view of rape was purely a matter of economics--of assets and liabilities . . . . [T]he monetary value of a woman determined the gravity of the crime" [56] (p. 22). This notion of women's sexuality as a medium of exchange is also apparent in many people's perceptions of date rape. An Association of American Colleges study found that many men feel that spending money on a date entitles them to have sex with her [57]. As Herman argues, The American dating system...places female in the position of sexual objects purchased by men .... [M]en are socialized to expect sexual reward (or at least to try for that reward) for their attention to women .... If a man.., has provided (a woman) with certain attention and gifts, then he has a right to expect sexual payment [56] (pp. 26-27). This kind of exchange, then, is very much within the realm of the 'normal'. It is much more explicit among prostitutes, but there is a great deal of variation among this group as well--in terms of experiences, working conditions, power to turn down work--and risk for HIV. Class, race, regional and work-context differences among prostitutes may affect their level of exposure to HIV. The fact that rates of HIV infection among U.S. sex workers are generally low but may vary "from 0% in a number of studies to above 80% in a few" can be explained by pointing out that prostitutes do not all face the same level of risk [27] (p. 136). High rates of infection were found where cohorts were contacted from IVdrug- treatment centers and jails [48]. High rates were also found among prostitutes from Florida, where there is a disproportionate number of non- 'professional' prostitutes (runaways, etc.) who are less likely to know how to protect themselves, and where there are many men from the Caribbean, among whom a relatively high number are HIVpositive, reflecting the different infection patterns prevalent in that area [27]. One study of U.S. sex workers found three general types--street prostitutes, escorts, and those who work part-time within the service sector--who face varying risks of infection [29]. Street prostitutes face a variety of risks, and among this group "economic incentives for risk-taking behaviors are common," especially during periods of recession, and especially for IV-drug-addicted prostitutes dependent upon sex work to pay for their drugs [29] (p. 282). IV-drugusing prostitutes are more likely to work on the street *i.e. Foreigners. in the first place [58], and they are more likely to be affected by crackdowns on prostitution, which may make it harder to find work and may make working riskier [29, 58]. Street violence or poor weather may also induce street prostitutes to bend the rules on safe sex in order to finish work earlier [29]. All these factors contribute to "a susceptibility to demands for unsafe sexual services" [29] (p. 282). On the other hand, street prostitutes may be more likely to use condoms while working than those prostitutes working under different conditions [21]. Escorts are more likely to have repeated encounters with the same client, and familiarity may foster inconsistent condom use. Also, street prostitutes are less likely to perform vaginal or anal intercourse than are escorts because those services are more difficult to perform outdoors, in cars, alleys, and so forth [29]. Racial discrimination may also be a factor in working conditions. More African American or Latina women may turn to sex work because of the more limited employment opportunities available to them in the first place. They also may be less able to obtain work in safer working environments such as massage parlors, casinos, escort services or brothels due to proprietors' racism [58]. These factors may lead to a disproportionate number of African American or Latina street prostitutes. Women of color may also earn less per job than Anglo women, which creates an economic incentive for consenting to clients' demands for unsafe sex [58]. All these factors may increase the risk of HIV infection among streetwalkers and African American and Latina prostitutes. Ickovics and Rodin argue that these differences between prostitutes' working environments are substantial enough to undermine the generalizability of studies which fail to recognize this diversity [17]. Prostitute as 'other' Unspoken assumptions about the abnormal sexuality of the prostitute become more explicit when the subject of discourses turns to non-Western prostitutes. Such women, doubly or even triply removed from the normative ideal--as prostitutes, as poor women and as women of color--appear as exotic fantasy objects. The particular shape this fantasy takes on varies from place to place according to the Western stereotype attached to the specific 'kind' of 'other'. African women, for instance, are depicted as promiscuous but not necessarily as attractive to Western men, unlike Southeast Asian, particularly Thai, women. The Thai woman is presented in the Western media as an exotic beauty, an Aphrodite in comparison to the Western sex worker, who is presented as a "whore".... [F]arang* see Thai sex workers in a different light to sex workers in their home land. (qtd in Ref. [35] p. 8). Discourses on Thai prostitutes may acknowledge their poverty but talk about them in the context of their enjoyment of their work, in keeping with the stereotype of the "exotic, enigmatic, submissive, and Women erotic" Asian woman described in Ara Wilson's "American Catalogues of Asian Brides" [59] (p. I 16). Catalogues of Asian mail-order brides, like brochures aimed at Western men promoting sex tours to Thailand or the Philippines, "construct imagined Oriental ladies that draw upon traditional representations of Asian women" [59] (p. 116). This text of an advertisement for mail-order brides--"Faithful Oriental girls make the best wives--by far . . . . Many feel its just about the only way left to find someone who is sweet and unspoiled" [59] (p. l l5)--does not differ greatly in tone or substance from the text of a pamphlet from a Swiss travel agency specializing in Southeast Asian sex tours: "Holidays with the most beautiful women of the world... Slim, sunburnt and sweet, they love the white man in an erotic devoted way. They are masters in the art of making love by nature . . . . " (qtd in Ref. [60] p. 100). Another brochure from a Dutch agency describes the sex workers as "little slaves who give real Thai warmth" (qtd in Ref. [61] p. 496). In keeping with this image, Western media frequently represent Southeast Asian prostitutes as happy to greet soldiers or tourists, shy, girlish, giggly and submissive. An article in In Health describes Mechai Viravaidya, the driving force behind Thailand's efforts to stem the epidemic, as talking to "the girls" about condoms: "the girls would shrug, giggle shyly, and tease him a bit" [62]. According to this article, "Thais do not take offence at much of anything; sanook is the work they use--fun, better to keep things fun" [62]. A Far Eastern Economic Review article describes Thailand along these lines as well: "Patpong and sex are an indelible facet of the country's exotic image . . . . It all looks so wholesome, so acceptable, like a walk in the park" [63] (p. 44). Thailand is described elsewhere as a place "Where they don't lock up their daughters" [64], "The lust frontier" [63], and "The land of smiles and sex" [63] (p. 44). Media reports create the impression that it is not, for instance, economic necessity but this supposed 'fun'-loving quality of Thai women, Or 'Thai seductresses' [65] (p. 48), that is the driving force behind their entrance into the sex industry. According to Newsweek, "Many provincial women want a taste of big-city life, and they are often tempted by the fancy clothes, gifts and gadgets they see other women bring back from their jobs in the city" [39] (p. 51). A newsletter from the International Campaign to End Child Prostitution in Asian Tourism (ECPAT) says that Historically, it was poverty.., that caused rural folk to sell their daughters to brothel owners. More recently, ambitious *Most prostitutes come from the poorest regions of Thailand [20]. tExacerbating this rise in incidence rates is the fact that the nineteen-week average life expectancy after diagnosis of a person of color with AIDS is less than one-fifth the two years typical of white people with AIDS [12]. and AIDS 67 young women have been tempted by the 'better life' they think is on offer in the glitzy honky-tonks of Bangkok, Pattaya and Phuket [66]. To speak of consumerist desires without any acknowledgement of severe and increasing rural poverty [67],* the traditional expectation that women make a substantial economic contribution to their natal household [68], and women's decreasing ability to do so through other means [52, 68] perpetuate eroticized fantasy images of Asian women. MOTHERS-WHO,-MAY-IN FECT-THEI R-CHILDR EN More women are turning up HIV-positive every year. The 1985 percentage of adult AIDS cases that occurred in women was 6.6%; this same group constituted 11.5% of all AIDS cases in 1990 [69]. These rates of infection are not evenly distributed throughout the population--it is not middle-class white women but poor women of color who are experiencing the greatest increase in rates of HIV infection. As of 1990, among women with AIDS, about 25% were Anglo, 20% were Latina, and about 55% were black. These figures combined with the distribution of these groups in the population at large means that "Hispanic and black women had cumulative incidence rates 8 and 13 times, respectively, that for whites" [69] (p. 2972). Even these high rates are only of AIDS cases among women, not of HIV-positive women, of whom there are likely to be exponentially greater numbers.t Despite the fact that rates of seropositivity among Western women are highest among lower-class black or Latina women, such women are also the least visible in discourses on AIDS. Rather, it is middleclass white women--those who are statistically less likely to contract HIV and thus somewhat atypical AIDS victims--who appear most frequently. Several articles in mainstream magazines on women with AIDS depict only white women, all but one having gotten the virus from heterosexual sex. This tendency toward unrepresentative depictions of people with AIDS is so striking that even the Associated Press remarked upon it: "Over and over, public service ads picture folks who are mostly heterosexual, who look comfortably well off and who, more often than not, are white" [70]. CDC advertisements on AIDS also reinforce this message that AIDS is a threat to the middle class [70]. One physician who works with people with HIV remarked that she gets "fairly irritated" to see "public health messages that try to depict white, middle-class people" [70]. She speculated that "we have to package this disease as a threat to the white middle class to get funding for it, to get attention, to get support" [70]. Contributing to this bias may be the fact that a majority of women with AIDS in the U.S. have a history of IV-drug use---a behavior for which women may find themselves particularly subject to societal disapproval, in part because of the perceived relationship between drug 68 Valerie Sacks use and poor mothering [47, 51]. As Hammonds put it, "We must ask why the vast disproportion of people of color in the AIDS statistics hasn't been seen as a remarkable fact, or as worthy of comment" [12] (p. 29). 'Good' mothers HIV-positive women, in addition to being whiter in discourses than they are in hospital beds, almost always appear in the context of their children--and these children are the overwhelming, if not total, focus of such depictions. For instance, in the articles referred to above on women's experiences with AIDS, nearly all the women depicted either had grown sons with HIV, or were HIV-positive themselves and had HIV-positive children. While women's concern about what will happen to their children is natural, such women's exclusive concern with this issue seems less so. Notions of 'good' or 'bad' mothers come into play in this context. Those women sympathetically portrayed are often depicted as preoccupied over what will happen to their children after they die--a preoccupation that seems to obliterate any concern about their own fate. Thus, one HIV-positive mother who discovered her seropositivity when her young son became ill states, "I never think of myself" [71] (p. 88). As one journalist put it, Always, everything comes back to children. It is so for the mother of five who goes to college full time and works full time and refuses to see a doctor despite her diagnosis. And for the mother who lives in a two-bedroom apartment with 15 children [72] (p. L27). When it is said that a 24-year-old woman's greatest fear was not the prospect of death, but what would happen to her four children [73] (p. BI), or when a 31-year-old black woman is quoted as saying "I wouldn't feel so bad if I didn't have my children" [72] (p. L27), notions of appropriate maternal behavior are reproduced. 'Good' mothers also emphasize their role in infecting their babies--again, a concern that apparently overwhelms any feelings they might have about having a terminal illness. An HIV-positive writer whose baby has AIDS elaborates on this sentiment: "What I kept imagining...was that suddenly, instead of nurturing and nourishing my baby girl, I might be poisoning her, infecting her, betraying her" [74] (p. 24). Another mother in the same situation apparently feels the same way: about her the writer comments, "I could not take away the power of her fear, of her sense that she is herself the source of the shadow hanging over her infant" [74] (p. 25). 'Good' HIV-positive mothers, then, are characterized by self-denigration for having transmitted the virus to their children, and by selflessness regarding their own fates. Such depictions, while sympathetic in some respects, are nonetheless one-sided. Why, that is, has it so consistently been the case that, as Devitt put it, "If news accounts dealing with Hie-infected women did not discuss prostitution, they usually focused on the plight of HIV-positive women's children, emphasizing the transmission of the virus from mother to fetus" [34] (p. 10). For most HIV-positive women only appear through indirect references to them in the context of what they may have 'done to' their babies or what may happen to their children as a result of their illness. As one writer notes in reference to a baby's mother, described as "a crack addict," "[w]here she is now, or whether she's even alive, (the baby's father) no longer knows or, he says, cares" [75] (p. 29). Along the same lines, Rolling Stone features a photograph of an eight-month-old baby "'infected with the virus by his mother, a prostitute" [76] (p. 70); and the Far Eastern Economic Review features a picture of an "AIDS-infected child: ultimate victim of ignorance" alongside photos of Thai prostitutes doing their hair and make-up [32] (p. 28). As one writer critical of these asymmetries remarked, "[w]omen continue to get the attention of most AIDS researchers only as possible infectors of children and men. It's as if HIV-infected women are viewed solely as carriers of disease" [15] (p. 24). 'Bad' mothers 'Bad' mothers--those who have become infected through IV-drug use, sex with multiple partners, or sex with IV-drug using, bisexual or Haitian men-- rarely appear in AIDS discourses as individuals. Their stigmatization and marginalization becomes apparent in debates such as that over a proposed New York State measure which would mean involuntary testing and identification of infants, and thus indirectly their mothers. As one typical article on the debate put is, the controversy is between two groups. On the one side is "an array of powerful special interest groups" for whom "the confidentiality law is untouchable, a piece of politically correct doctrine" [75] (p. 28). On the other is a "much less organized group of doctors" who emphasize the important implications of early identification of HIV-positive infants in terms of their care and the prolongation of their lives [75] (p. 28). While no one would question the importance of attempting to help these children, it is not at all apparent why their health must come at the expense of their mother's civil rights. At least one study has indicated that "[e]nforced newborn HIV testing...wouldn't be necessary in the vast majority of cases if effective HIV counseling were available to every pregnant woman" [75] (p. 30). Many women who have reasons for not wanting to take the test, for example, might be willing to do so if they were told that it might help their child. One article, entitled "AIDS Babies Pay the Price", recognizes this but nonetheless argues that "[t]bese dangers" are hypothetical and pale compared with the concrete fact that hundreds of babies are being neglected for whom something useful might be done . . . . It seems cruel and misguided to Women and AIDS 69 protect parental privacy when the welfare of tiny babies is at stake [77] (p. A26). The negative consequences for the mother---or even the possibility that knowledge of her serostatus might help her as well--are not seen as pertinent issues. The threat of interventions such as mandatory testing of pregnant women or involuntary testing of babies plays upon normative notions of who are and who are not appropriate maternal figures.* Pivnick attributes calls for mandatory testing, sterilization and prosecution to public discourses which, "reflecting middle-class values and sensibilities, ha(ve) focused almost exclusively on an assumed opposition between potentially infected infants and their mothers, portraying the latter as selfish drug users who lack moral scruples" [47] (p. 153). The stigmatization of HIV-positive mothers can be intense. Among poor women, even asymptomatic HIV-positive mothers "can experience discrimination, shunning, and abuse both from within and without the health care system" [78] (p. 196). Such women may not pursue services available to them because "they don't want to risk losing their jobs, or risk the stigmatization of their kids if their status is known," and because they may recognize the lack of social support available to HIV-positive women [79] (p. 43). Expectant mothers with HIV may fear that disclosure of information about their HIV status will lead to "abandonment by their mates" [75] (p. 31),t "deportation (in the case of Haitians), or loss of their children... Medicaid benefits, or even jail (if the mother is a prostitute)" [78] (p. 196). Compounding these problems is the fact that such women are already stigmatized and disempowered in a number of respects; their pregnancy and serostatus may only add to their layers of problems. IV-drug-using women, for instance, may "be stigmatized more than their male counterparts", particularly when their drug use seems to interfere with their "fulfillment o f . . . nurturant role obligations" [51] (p. 31). The stereotypic association between female IV-drug use and prostitution also reinforces their stigmatized status [51]. IV-drug-using women are also less likely than their male counterparts to be able to maintain supportive family ties, thus increasing their isolation and perhaps reinforcing their ties to IV-drug-using colleagues [80, 81]. Because almost three-quarters of HIV-positive mothers in the U.S. receive public assistance, and the mean income of those who are employed is about $10,000 a year [51], HIV-positive pregnant women *It also reflects the primacy of the fetus over the mother in the eyes of many, perhaps a reflection of the prolife movement's success in insisting upon the inviolable personhood of fetuses. (I owe this insight to Myra Dinnerstein.) tConcerns which are not unrealistic--nine out of ten ill or disabled women are abandoned by their mates [79] (p. 43). are particularly vulnerable to mechanisms of control deployed through contact with public health and other governmental institutions. Studies of such interactions reveal many ways in which micro-level forms of control--either institutional protocols or interactions between hospital workers and patients-- perpetuate such women's stigmatization and disempowerment, and discourage or prevent them from accessing badly needed assistance. Women who are IV-drug users or prostitutes tend to be already suspicious of institutions and unwilling to acknowledge "illegal or socially unacceptable behavior" because of bad past experiences [51] (p. 30). African Americans share a long history of distrust of public health services and other institutions, particularly those that involve giving whites personal information [80]. Latinos have been noted to avoid test sites and clinics as well [51]. This distrust may contribute to delay and avoidance in seeking preventive or timely health care services [79]. One study of HIV-positive expectant mothers and the levels of confidentiality afforded them in one hospital setting found that the consequences of public knowledge of women's serostatus can vary in severity according to the class affiliation of the woman seeking care. For one HIV-positive mother, "the daughter of a respective physician in the community," the hospital cooperated in "spreading a cloak of secrecy over her" [78] (p. 198). There are no records of her HIV status in the hospital, and because the research project funds the cost of her care, there is no need for such records for insurance reasons [78]. In contrast, "those...who are already disempowered" because they are poor, black, Latino, or otherwise affiliated with a stigmatized group (e.g. IV-drug-users or prostitutes) may have less control over who knows what about them at the same time that they are more dependent upon public services [78] (p. 199). This is also the group harboring the highest rates of maternal HIV [51, 73]. THE RESPONSIBLE BODY VS THE DISEASED BODY Another important theme in U.S. culture that is implicit in AIDS discourses about both prostitutes and HIV-positive mothers is that of self-control and self-discipline. AIDS discourses imply that HIV can be prevented through disciplined behavior, and that therefore those who become infected with it are responsible for their illness. In the context of AIDS, 'promiscuous' or 'indiscriminate' sex as well as IVdrug addiction or 'inappropriate' pregnancy become powerful indices for loss of control. The properly disciplined body uses sex and intoxicants in controlled and socially acceptable ways. Prostitutes, seen as "ostentatiously overconsumptive of sexual partners" (after Ref. [82] p. 72) and often associated with the use of addictive drugs, are seen as undisciplined and worthy of censure. Pregnant, HIV-positive mothers, as 'unfit mothers,' are also seen as out of 70 Valerie Sacks control--having failed to protect themselves from HIV, having failed to prevent themselves from getting pregnant, and having often engaged in activities deemed inappropriate for would-be mothers. Thus, these notions of individual responsibility for health and self-control are reflected in AIDS discourses through the stigmatization of those perceived as incapable of controlling what goes into and comes out of their bodies. It is also perhaps this notion of individual responsibility for health that is behind the categorization of some people with AIDS as 'guilty' and others as 'innocent'. HIV-positive women appear 'guilty', their infected offspring do not. Men who acquire the HIV virus through homosexual sex appear 'guilty', those who acquire it through heterosexual sex do not. In this way, media images reflect and perpetuate a much greater level of anxiety regarding women's and homosexual men's sexual activity than they do for heterosexual men's sexual activity, a sensitivity not related to actual levels of sexual activity. Another implication of these notions of individual responsibility for health and self-control is that, if you are responsible for your health, you are responsible for your illness. The ideology of personal responsibility thus works to focus blame on those who are 'guilty' for their illness, and to deflect attention away from the social context of the spread of disease. This process serves to "mystif(y) the social production of disease and undermine demands for rights and entitlements to medical care" [83] (p. 75). As Worth put it, implicit in the idea that AIDS or other diseases are the result of 'bad personal behavior', such as IV-drug use, is the assumption that the government or society cannot address the roots of IV-drug use in poverty, racism, and sexism [80] (p. 126). It thus deflects attention away from the consistently demonstrated links between poverty and a host of social and biological illnesses [81, 84]. A focus on the social context in which many poor women of color live may illustrate how difficult it can be for such women to take control of certain aspects of their lives. Poor women of color may find it difficult to protect themselves from AIDS if they live in areas where a significant proportion of the available sex partners use drugs--which is in turn in part a response to poverty, hopelessness and chronically high rates of unemployment and underemployment. This situation may be exacerbated by the relative shortage of young men in such communities due to high death and imprisonment rates. The scarcity of men in turn may mean women have less leverage over or ability to make demands upon male sexual partners. Furthermore, the lack of economic alternatives available to poor minority women means they may need to rely on exchanging sex for access to economic goods, whether through prostitution or through a variety of less explicit exchanges. The fact that physical abuse was extremely common among women in Worth's sample--three-quarters of interviewed women said they had been physically abused as adults, usually by their sex partner [50]---is also likely to be a great disincentive for those who wish to make demands on fidelity, insist upon condom use or make other potentially threatening changes in their relationships. Since use of condoms may connote promiscuity, a lack of trust regarding the partners' behavior, one's own infidelity, or lack of commitment [49, 79, 80], the idea of suggesting condom use may be quite daunting. The fact that those under 25, blacks and Latinos, lower-income people and those with less education are likely to be less well-informed about AIDS [85] also makes it harder to insist upon behavioral changes. All of these factors make it more difficult for poor women of color to protect themselves than discourses exhorting them to 'just' use condoms indicate. For many women of color, "being assertive and getting their men to wear condoms is a ludicrous idea" [15] (p. 29). The ideology of individual responsibility thus bolsters the fiction that all members of society are equally capable of 'controlling' their health, and if disproportionately high numbers of some 'kinds' of people are manifestly less able to do so, then it must somehow be their fault. Attention is deflected away from the systematic inequalities that make it objectively more difficult for women, the poor, and people of color to control certain aspects of their lives. CONCLUSION That the enormous amount of media attention given to the AIDS epidemic goes far beyond the level of coverage that would seem necessary for public health reasons is illustrated by themes revealed through a close reading of discourses pertaining to AIDS. These discourses exhibit certain patterns-- patterns that could be accurately construed as, for example, racist, sexist or homophobic, but that are more inclusively described as attempts to produce and reiterate notions of normative and deviant sexuality. AIDS discourses, ostensibly about disease but equally about sexuality, reproduce relations of power by exhorting us to embody norms that reflect these hierarchical relations, and thereby to reproduce power relations ourselves. AIDS discourses on women focus on normative notions of sexuality, notions which are often conveyed through stigmatizing discourses about deviant women. Prostitutes are depicted as indiscriminate in their sexuality and dangerous and polluting to men, although their rates of HIV infection are generally much exaggerated, and although most sex workers are in much greater danger of becoming infected than they are of infecting others. Their vulnerability to infection and the suffering they may endure are downplayed--heterosexual men with AIDS are much more likely to be depicted as victims. Prostitutes are Women and AIDS 71 also essentialized in the sense that they are rarely depicted as individuals, they are perceived as being somehow categorically different from 'normal' women, and their experiences are implicitly assumed to be much more homogeneous than they really are. Asian prostitutes are depicted in particularly distorted ways, and some of the more subtly communicated assumptions about Western prostitutes become amplified and distorted according to racist and sexist stereotypes when discussion turns to them. Essentializing assumptions about prostitutes deflect attention away from the context of poverty and disempowerment that precipitates many women's decision to engage in sex work, away from the heterogeneity of sex workers' working conditions and risk for HIV, and away from the ambiguous boundary between women who will and will not exchange sexual services for money or other material support. When women other than prostitutes are depicted in AIDS discourses, they are almost always HIVpositive mothers or HIV-positive pregnant women. Just as prostitutes are largely of concern in AIDS discourses insofar as they may infect heterosexual men, mothers are largely of concern insofar as they may infect their babies. Children are overwhelmingly- if not exclusively--the focus of these discourses. Women depicted as 'good' mothers obsess about what will happen to their children, dwell on their role in transmitting the virus to their babies, and never think of themselves. 'Bad' mothers are less visible, appearing only collectively in the context of involuntary testing of infants or mandatory testing of pregnant women. In these cases in particular, arguments tend to be framed in dichotomous terms of either prolonging the lives of helpless 'tiny' babies or insisting upon maintaining 'politically correct doctrines' that worry about minor issues such as women's civil rights. Although there are good medical and ethical reasons for encouraging women to be tested or to allow their babies to be tested, the other side of the story--the good reasons women may have for not wanting to be tested--is rarely mentioned. In fact, HIV-positive mothers whose serostatus is known may face a variety of difficulties, such as intense stigmatization and the loss of tangible, badly needed supports. Finally, the themes of self-control and self-discipline so pervasive in U.S. culture may also be used to stigmatize women. First, AIDS discourses concerned with responsibility suggest that because there are ways to avoid becoming infected, those who have AIDS are responsible for their own illness, 'guilty', and not deserving much sympathy. Second, AIDS discourses concerned with self-control depict prostitutes, because of their 'uncontrolled' sexuality, and HIV-positive mothers, because of the combination of seropositivity and pregnancy, as out of control and worthy more of censure than of sympathy. Finally, AIDS discourses that emphasize personal responsibility deflect attention away from the social and economic contexts which may make it more difficult for some to avoid infection--by telling women to 'just' use condoms when women are not the ones who wear condoms, and when even suggesting condom use may be considered socially unacceptable in a variety of ways. Such discourses also direct attention away from the persistently demonstrated links between poverty, illness and disempowerment, and away from the systematic inequalities that characterize U.S. society. Acknowledgements--I thank Marcia Inhorn, Myra Dinnerstein, Mark Nichter, Joel Post and two anonymous referees for their comments on previous drafts of this paper. REFERENCES 1. Foucault M. The History of Sexuality. Vol. I: An Introduction. (Translated by Hurley R.). Vintage Books, New York, 1990. 2. Albert E. Illness and deviance: the response of the press to AIDS. In The Social Dimensions of AIDS: Method and Theory (Edited by Feldman D. and Johnson T.), pp. 163-178. Praeger Publishers, New York, 1986. 3. Plummer K. Organizing AIDS. In Social Aspects of AIDS (Edited by Aggleton P. and Homans H.), pp. 20-51. The Falmer Press, London, 1988. 4. Moore A. and Le Baron R. The case for a Haitian origin of the AIDS epidemic. In The Social Dimensions of AIDS: Method and Theory (Edited by Feldman D. and Johnson T.), pp. 77-93. Praeger Publishers, New York, 1986. 5. Sabatier R. AIDS and the Third Worm (Edited by Tinker J.). The Panos Institute, London, 1989. 6. Sabatier R. Blaming Others: Prejudice, Race and Worldwide AIDS (Edited by Tinker J.). The Panos Institute, London, 1988. 7. Aina T. The myth of African promiscuity. In Blaming Others: Prejudice, Race and Worldwide AIDS (Edited by Tinker J.), pp. 78-80. The Panos Institute, London, 1988. 8. Munyakho D. How the western media got it wrong. In Blaming Others: Prejudice, Race and Worldwide AIDS (Edited by Tinker J.), pp. 98-101. The Panos Institute, London, 1988. 9. Farmer P. AIDS and accusation: Haiti, Haitians, and the geography of blame. In The Social Dimensions of AIDS: Method and Theory (Edited by Feldman D. and Johnson T.), pp. 67-91. Praeger Publishers, New York, 1990. 10. Lang N. Sex, politics, and guilt: a study of homophobia and the AIDS phenomenon. In Culture and AIDS (Edited by Feldman D.), pp. 169-182. Praeger Publishers, New York, 1990. I1. Cerullo M. and Hammonds E. AIDS and Africa: the western imagination and the Dark Continent. Radical Am. 21, 17, 1987. 12. Hammonds E. Race, sex, AIDS: the construction of ~other'. Radical Am. 20, 28, 1986. 13. McNay L. Foucault & Feminism. Northeastern University Press, Boston, 1992. 14. Gilman S. Difference and Pathology: Stereotypes of Sexuality, Race, and Madness. Cornell University Press, Ithaca, 1985. 15. Byron P. HIV: the national scandal. Ms I, (4), 24, 1991. 16. Ribble D. A day in the life. In AIDS: The Women (Edited by Rieder I. and Ruppelt P.), pp. I 11-115. Cleis Press, San Francisco, 1988. 17. Ickovics J. and Rodin J. Women and AIDS in the United States: epidemiology, natural history, and mediating mechanisms. Hlth Psychol. 11, 1, 1992. SSM 42/I--F 72 Valcrie Sacks 18. Schoepf B. Women, AIDS, and economic crisis in central Africa. CIAS: RCEA. 22, 625, 1988. 19. Brunham R. and Ronald A. Epidemiology of sexually transmitted diseases in developing countries. In Research Issues in Human Behavior and Sexually Transmitted Diseases in the AIDS Era (Edited by Wasserheit J., Aral S. and Holmes K.), pp. 61-80. American Society for Microbiology, Washington, DC, 1991. 20. Pasuk P. From Peasant Girls to Bangkok Masseuses. International Labour OffÉce, Geneva, 1992. 21. Alexander P. A chronology, of sorts. In AIDS: The Women (Edited by Rieder I. and Ruppelt P.), pp. 169- 172. Cleis Press, San Francisco, 1988. 22. King D. "Prostitute as pariah in the age of AIDS": a content analysis of coverage of women prostitutes in The New York Times and the Washington Post September 1985-April 1988. Women Hlth 16, (3-4), 155, 1990. 23. Stall R., Huertin-Roberts S., McKusick L., HoffC. and Lang S. W. Sexual risk for HIV transmission among singles-bar patrons in San Francisco. Med. Anthrop. Q. 4, 115, 1990. 24. Campbell C. Prostitution, AIDS, and preventive health behavior. Soc. Sci. Med. 32, 1367, 1991. 25. Rieder I. and Ruppelt P. Prostitution in the age of AIDS (Introduction to Section V). In AIDS: The Women (Edited by Rieder I. and Ruppelt P.), pp. 155-156. Cleis Press, San Francisco, 1988. 26. Day S. Prostitute women and the ideology of work in London. In Culture and AIDS (Edited by Feldman D.), pp. 92-109. Praeger Publishers, New York, 1990. 27. Pheterson G. Update on HIV Infection and Prostitute Women. Proc. of Fourth International Conference on AIDS. Stockholm: 12-16 June, 1988. In A Vindication of the Rights of Whores (Edited by Pheterson G.), pp. 132-140. The Seal Press, Seattle, 1989. 28. Population Reports. Programs for People at High Risk. Issues Wld. Hlth Serise L, 14-19, 1989. 29. Jackson L., Highcrest A. and Coates R. Varied potential risks of HIV infection among prostitutes. Soc. Sci. Med. 35, 281, 1992. 30. Jenness V. From sex as sin to sex as work: COYOTE and the reorganization of prostitution as a social problem. Soc. Problems 37, 403, 1990. 31. van der Drift A. et al. Health: "Our First Concern". Roundtable discussion. International Committee for Prostitutes' Rights Congress in Brussels. 3 October, 1986. In A Vindication of the Rights of Whores (Edited by Pheterson J.), pp. 109-131. The Seal Press, Seattle, 1989. 32. Waller A. A fight on all fronts. Far East Econ. R. 13th February, 28, 1992. 33. Handley P. Dangerous liaisons. Far East Econ. R. 21st June, 25, 28, 30, 1990. 34. Devitt T. Women & AIDS: scant coverage of a growing epidemic. Extra/July/August, 10, 1993. 35. van Kerkwijk C. The dynamics of condom use in Thai sex work with farang clients. Unpublished manuscript. 1993. 36. Schur E. Labeling Women Deviant: Gender, Stigma, and Social Control. McGraw-Hill, New York, 1984. 37. Magana J. R. Sex, drugs and HIV: an ethnographic approach. Soc. Sci. Med. 33, 5, 1991. 38. Havanon N., Bennett A. and Knodel J. Sexual networking in provincial Thailand. Stud. Family Plann. 24, 1, 1993. 39. Moreau R. Sex and death in Thailand. Newsweek 120, (3), 50, 1992. 40. "Pandemic." Medicine at the Crossroads. WNET (Public Broadcasting System affiliate), New York. April 25, 1993. 41. Black R., Collins S. and Boroughs D. L. India: driving blindly into an epidemic. U.S. News Wld Report July 27th, 54, 1992. 42. Black R., Collins S. and Boroughs D. L. Thailand: selling sex dopes not pay. U.S. News Wld Report July 27th, 52, 1992. 43. Black R., Collins S. and Boroughs D. L. Brazil: shooting up the future. U.S. News WId Report July 27th, 55, 1992. 44. Black R., Collins S. and Boroughs D. L. Dominican Republic: cutting bitter lives short. U.S. News Wld Report July 27th, 56, 1992. 45. Black R., Collins S. and Boroughs D. L. Uganda: harvesting a crop of sorrow. U.S. News Wld Report July 27th, 57, 1992. 46. Black R., Collins S. and Boroughs D. L. Zambia: digging a very dangerous hole. U.S. News Wld Report July 27th, 58, 1992. 47. Pivnick A., Jacobson A., Eric K., Mulvihill M., Hsu M. A. and Drucker E. Reproductive decisions among HIV-infected, drug-using women: the importance of mother-child coresidence. Med. Anthrop. Q. 5, 153, 1991. 48. Pheterson G. Not repeating history. In A Vindication of the Rights of Whores (Edited by Pheterson G.), pp. 3-30. The Seal Press, Seattle, 1989. 49. Riede I. and Ruppelt P. Occupational hazards. In AIDS: The Women (Edited by Rieder I. and Ruppelt P.), pp. 165-168. Cleis Press, San Francisco, 1988. 50. Worth D. Sexual deeision-making and AIDS: why condom promotion among vulnerable women is likely to fail. Stud. Family Plann. 20, 297, 1989. 51. Shayne V. and Kaplan B. Double victims: poor women and AIDS. Women Hlth 17, 21, 1991. 52. Thorbek S. Voices from the City: Women of Bangkok. Zed Books Ltd, London, 1988. 53. Hunt C. Africa and AIDS: dependent development, sexism, and racism. Mort. Rev.: An Independent Socialist Magazine 39, (9), 10, 1988. 54. Standing H. AIDS: conceptual and methodological issues in researching sexual behavior in Sub-Saharan Africa. Soc. Sci. Med. 34, (5), 475, 1992. 55. Tabet P. I'm the meat, I'm the knife: sexual service, migration, and repression in some African societies. In A Vindication of the Rights of Whores (Edited by Pheterson G.), pp. 204-223. The Seal Press, Seattle, 1989. 56. Herman D. The rape culture. In Women: A Feminist Perspective (Edited by Freeman J.), pp. 20-44. Mayfield Publishing Co., Mountain View, CA, 1989. 57. Hughes J. and Sandler B. Peer harassment: hassles for women on campus. Project on the Status and Education of Women. Association of American Colleges, Washington, CD, N. pag., 1988. 58. Campbell C. Women and AIDS. Soc. Sci Med. 30, 407, 1990. 59. Wilson A. American catalogues of Asian brides. In Anthropology for the Nineties: Introductory Readings (Edited by Cole J.), pp. 114-125. The Free Press, New York, 1988. 60. O'Malley J. Sex tourism and women's status in Thailand. Loisir Soc. 11, 99, 1988. 61. Robynson L. In the penile colony: touring Thailand's sex industry. The Nation 257, 492, 1993. 62. Cooke P. The condom king and I. In Hlth 5, (Sept./Oct.), 64, 1991. 63. Handley P. The lust frontier. Far East Econ. R. 2nd November, 44, 1989. 64. Hantrakul S. Where they don't lock up their daughters. Far East Econ. R. 121, (31), 26, 1983. 65. Hornblower M. The skin trade. Time June 21st, 45, 1993. 66. ECPAT (International Campaign to End Child Prostitution in Asian Tourism). Removing a blight: now Thailand can end child prostitution. Newsletter N.p., n.p., (7), January, 1993, N. pag. 67. Choonhavan K. Thailand: economic development and rural poverty--a country report. In Unreal Growth: Women Critical Studies in Asian Development (Edited by Manh- Lan N.), Vol. 1, pp. 478-504. Hindustan Publishing Corporation, India, 1984. 68. Muecke M. Make money not babies: changing status markers of Northern Thai women. Asian Survey 24, 459, 1984. 69. Ellerbrock T., Bush T. V., Chamberland M. E. and Oxtoby M. J. Epidemiology of women with AIDS in the United States, 1981-1990: a comparison with heterosexual men with AIDS. JAMA 265, 2971, 1991. 70. Arizona Daily Star. AIDS risk to middle class is overstated, some say. Arizona Daily Star 17 April 1994. 71. Seymour L. The inside story. McCall's January, 85, 1993. 72. Martin D. About New York: a woman with AIDS asks: who will care for her children? New York Times 140, L27, 20 April, 1991. 73. Teltsch K. Mothers dying of AIDS get child custody help. New York Times 140, BI, 27 August, 1991. 74. Klass P. Mothers with AIDS: a love story. New York Times Mag. Section 6, 24, 4 November, 1990. 75. Hellman P. Suffer the little children. New York 27 (8), 27. 76. Rhodes R. Death in the candy store. Rolling Stone 618, 62, 1991. 77. New York Times. AIDS babies pay the price. The New York Times A26, 13 August, 1993. and AIDS 73 78. Brown K. Descriptive and normative ethics: class, context and confidentiality for mothers with HIV. Soc. Sci. Med. 36, 195, 1993. 79. Nemeth M. and Doyle S. 'Oh my God, it could be me'. Maclean's 106, (36), 42, 1993. 80. Worth D. Minority women and AIDS: culture, race, and gender. In Culture and AIDS (Edited by Feldman D.), pp. I 11-135. Praeger Publishers, New York, 1990. 81. Singer M., Singer M., Fiores C., Davison L., Burke G., Castillo Z., Scanlon K. and Rivera M. SIDA: The economic, social, and cultural context of AIDS among Latinos. Med. Anthrop. Q. 4, 72, 1990. 82. Alcorn K. Illness, metaphor and AIDS. In Social Aspects of AIDS (Edited by Aggleton P. and Homans H.), pp. 63-82. The Falmer Press, London, 1988. 83. Crawford R. A cultural account of health control, release, and the social body. In Issues in the Political Economy of Health Care (Edited by McKinley J.), pp. 60-101. Tavistock Publications, New York, 1984. 84. Ratcliffe J. and Wallack L. Primary prevention in public health: an analysis of basic assumption. Int. Q. Commun. Hlth Educ. 6, 215, 1986. 85. Feldman D. AIDS health promotion and clinically applied anthropology. In The Social Dimensions of AIDS: Method and Theory (Edited by Feldman D. and Johnson T.), pp. 145-159. Praeger Publishers, New York, 1990. |
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